Woman Secures Clinical Trial for Extremely Rare Disease

Through remarkable determination, Neena Nizar became the first patient in a clinical trial for her disease, which affects only 30 people worldwide, offering hope for a treatment.

17 Aug, 09:01 — 17 Aug, 09:01

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NYTMostly Factual14h ago

How One Woman With a Very Rare Disease Secured a Clinical Trial

Through sheer determination, Neena Nizar has become the first patient in a clinical trial testing a treatment for her disease — one so rare it affects just 30 people worldwide.

By Gina Kolata

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Woman Secures Clinical Trial for Extremely Rare Disease

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How One Woman With a Very Rare Disease Secured a Clinical Trial

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