Living with Cystinosis: A Personal Journey of Resilience

Lucy Beckwith shares her experience living with cystinosis, a rare genetic disorder diagnosed in infancy, detailing her struggles with kidney failure, spinal surgery, and a transplant, and how it shaped her resilience.

2 Jul, 18:00 — 2 Jul, 18:00

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the-journal46d ago

Living with cystinosis: The rare disease that upended my life, but taught me resilience

Lucy Beckwith was diagnosed with a rare condition as a baby and has since faced kidney failure, spinal surgery and a transplant in her teens.

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Living with Cystinosis: A Personal Journey of Resilience

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Living with cystinosis: The rare disease that upended my life, but taught me resilience

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