Advocacy for Friedreich’s Ataxia Takes a Toll on Campaigner

Niamh Ní Hoireabhaird, a campaigner for Friedreich’s ataxia, discusses the personal cost and draining nature of advocacy despite increased awareness for the rare disease.

20 Aug, 04:30 — 20 Aug, 04:30

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irish-independent10d ago

‘Increased awareness about my rare disease Friedreich’s ataxia is incredible to see, but it has definitely come at a cost’

Advocacy is draining and is taking its toll, writes campaigner Niamh Ní Hoireabhaird

By Niamh Ní Hoireabhaird

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Advocacy for Friedreich’s Ataxia Takes a Toll on Campaigner

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‘Increased awareness about my rare disease Friedreich’s ataxia is incredible to see, but it has definitely come at a cost’

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