
Woman Sues HSE Over Access to Drug for Rare Disease
A 28-year-old woman from Co Kilkenny, diagnosed with the rare neuromuscular disease Friedreich’s ataxia at age 12, is suing the Health Service Executive (HSE) over alleged delays in determining her application for access to a crucial drug, citing 'irreversible consequences'.
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Co Kilkenny woman diagnosed with rare disease sues HSE over access to drug
Emily Felix (28) was 12 when she was diagnosed with Friedreich’s ataxia, a progressive neuromuscular disease
Read full article →‘Irreversible consequences’ – Woman with Friedrich’s Ataxia sues HSE over alleged delays in application determination
Felix’s lawyers submit that delaying her access to the drug has “real and irreversible consequences”.
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