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Irish Health Service Covers Cost of Life-Changing Drug for Rare Disease Patient

The HSE has agreed to fund a specialized medication for a 30-year-old woman with Friedreich’s ataxia, marking a significant victory for rare disease advocacy in Ireland.

26 Aug, 04:30 — 26 Aug, 04:30
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irish-independent3h ago

‘It’s my 30th birthday, this is the gift I dreamed of’ – woman with Friedreich’s ataxia as HSE covers cost of life-changing drug

By Eilish O'Regan

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