Seven-Year-Old Girl Battles Rare Pompe Disease

Seven-year-old Phuong Anh lives with Pompe disease, a rare genetic disorder that necessitates a sugar-free diet and costly biweekly infusions to sustain her life.

21 Apr, 07:00 — 21 Apr, 07:00

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VnExpressMixed130d ago

The unsweet life of a girl with Pompe disease

Seven-year-old Phuong Anh has lived with Pompe disease, a rare genetic disorder that requires her to avoid sugar entirely and undergo costly biweekly infusions to stay alive.

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Seven-Year-Old Girl Battles Rare Pompe Disease

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The unsweet life of a girl with Pompe disease

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